论文标题

癫痫患者的一小部分在Facebook突然出现意外死亡之前显示出增加的活动

Small Cohort of Epilepsy Patients Showed Increased Activity on Facebook before Sudden Unexpected Death

论文作者

Wood, Ian B., Correia, Rion Brattig, Miller, Wendy R., Rocha, Luis M.

论文摘要

癫痫病(SUDEP)突然出乎意料的死亡仍然是癫痫患者死亡的主要原因。尽管患者持续存在风险和家庭成员的丧亲,但迄今为止,SUDEP的生理机制仍然未知。在这里,我们探讨了使用文本和情感分析从在线数字行为数据中识别SUDEP的推定预测信号的潜力。具体来说,我们分析了六名癫痫患者的Facebook时间表,该癫痫患者因幸存家庭成员而捐赠的SUDEP死亡。我们发现通过文本和情感分析工具可检测到的行为变化的初步证据。也就是说,在其SUDEP活动之前的几个月中,患者社交媒体时间表显示:i)冗长的增加; ii)增加功能单词的使用; iii)情绪转移,如不同的情绪分析工具所衡量的。这些结果结合起来表明,社交媒体参与及其感情可能是癫痫患者SUDEP的可能提前训练信号。尽管这项研究中分析的患者时间表的少量样本阻止了概括,但我们的初步研究证明了社交媒体数据作为SUDEP和癫痫研究大型研究中的补充数据的潜力。

Sudden Unexpected Death in Epilepsy (SUDEP) remains a leading cause of death in people with epilepsy. Despite the constant risk for patients and bereavement to family members, to date the physiological mechanisms of SUDEP remain unknown. Here we explore the potential to identify putative predictive signals of SUDEP from online digital behavioral data using text and sentiment analysis. Specifically, we analyze Facebook timelines of six epilepsy patients deceased due to SUDEP, donated by surviving family members. We find preliminary evidence for behavioral changes detectable by text and sentiment analysis tools. Namely, in the months preceding their SUDEP event patient social media timelines show: i) increase in verbosity; ii) increased use of functional words; and iii) sentiment shifts as measured by different sentiment analysis tools. Combined, these results suggest that social media engagement, as well as its sentiment, may serve as possible early-warning signals for SUDEP in people with epilepsy. While the small sample of patient timelines analyzed in this study prevents generalization, our preliminary investigation demonstrates the potential of social media data as complementary data in larger studies of SUDEP and epilepsy.

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